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URL title: New Consensus Care Guideline Will Significantly Improve Quality of Life for Adults with Duchenne Muscular Dystrophy | IOS Press
URL description: Amsterdam, NL – Many more adults with Duchenne muscular dystrophy (DMD) are living longer thanks to improvements in treatment, however international standards of care have not yet fully addressed the complex needs of these patients. The Adult North Star Network (ANSI) has developed a set of consensus-based recommendations designed to significantly improve quality of life for patients living longer with DMD. These recommendations are published in the Journal of Neuromuscular Diseases.
URL last crawled: 2022-08-29

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